Solution

Kellen led MGFA’s leadership through a complete strategic review, resulting in a new mission statement, goals, and strategic priorities. Notably, we facilitated transparent discussions with chapters and provided guidance on MGFA’s future decision making and organizational structure. Kellen worked closely with volunteer leaders to create and implement a national communications program to raise visibility about the disease among the public. We focused on leveraging online movements, such as #IHaveHeardofMG, to create a national fundraising program, developing a stronger relationship with the National Health Council, designing new newsletters and brochures, and improving the quality of events. By targeting specific subsets within the MG community, rather than talking to the MG community as a whole, and by revising the PR Toolkit and tutorial webinar, local volunteers became more empowered to spread the word and awareness of MG grew substantially.